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Download PDF by Herbert Gottweis, Alan Petersen: Biobanks: Governance in Comparative Perspective

By Herbert Gottweis, Alan Petersen

In fresh years, a few huge population-based biobanks – genetic databases that mix genetic details derived from blood samples with own facts approximately atmosphere, scientific historical past, way of life or family tree – were organize with a view to learn the interface among ailment, and genetic and environmental components. Unsurprisingly, those reviews have sparked a great deal of controversy and the moral and social implications were greatly debated.

Biobanks: Governance in Comparative Perspective is the 1st e-book to discover the political and governance implications of biobanks in Europe, the USA, Asia, and Australia. This booklet explores:

  • the interrelated stipulations wanted for a biobank to be created and to exist
  • the upward push of the recent bio-economy
  • the redefinition of citizenship accompanying nationwide biobank developments

This groundbreaking ebook makes transparent that biobanks are a phenomenon that can't be disconnected from issues of energy, politics, and the reshaping of present practices in governance. it will likely be a beneficial learn for students and scholars of genetics, bioethics, hazard, public health and wellbeing and the sociology of health and wellbeing and illness.

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Additional info for Biobanks: Governance in Comparative Perspective

Sample text

Pearson, H. (2004) ‘Summit calls for clear view of deposits in all biobanks’, Nature, 432: 426. Petersen, A. (2005) ‘Securing our genetic health: engendering trust in UK Biobank’, Sociology of Health & Illness, 27 (2): 271–92. Petersen, A. ’, Health: An Interdsiciplinary Journal for the Social Study of Health, Illness and Medicine, 10 (4) (10th Anniversary Issue on ‘conceptions of health’): 481–500. Petryna, A. (2002) Biological Citizenship: Science and the Politics of Health after Chernobyl. Princeton, NJ: Princeton University Press.

In the Japan biobank project, the central goals are to assemble blood samples and DNA as well as clinical information about 300,000 individuals, based on standard ‘informed consent’ protocols to store this information in line with appropriate data safety measures; to determine specific groups of symptoms or reactions to medication using the clinical database and to perform a SNPs analysis covering all genes; and to develop appropriate software tools for the analysis, and application of the various datasets created by the project.

The rise of biological citizenship surely can be understood as an important aspect in new government of life through biobanks. But active (biosocial) citizens who insist on their interaction with the biomedical system based on the respect of their rights as citizens and human beings is only one facet of the currently emerging biopolitical order. To be sure, current bioethical and legal discourse in the field of biobanking literally conjures images of the human being of modernity, the coherent self-determined and rational individual equipped with human and individual rights.

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